Welcome to Carion Fenn Network. A place to share, learn & support. (Syringomyelia/Chiari Malformation/ Rare & Chronic Diseases & Seniors)
Welcome to our network. Glad you are here with us. Feel free to browse around and get to know our community. You can read other members profiles to see what they are going through, what treatment or medications they are trying and how they have been coping. Have questions? Want to hear from others or engage with our members? Start a blog, forum or join our groups. At the top of our website are tabs to help you get familiar with our network. Check out our events page for upcoming events. Membership to our network is free, however you can become a subscriber or donate to help build our network and support our community. Also available is information for you get your wristband to help increase awareness. Again, welcome to our community. No one should ever be alone with an ailments and its important to get support and support each other because Together We Are Stronger.
Carion Fenn Network.
Carion Fenn Network focuses on providing the platform for our members to support each other. With your contribution, you are helping our team provide educational information, helpful resources, and provide support to our members needed to navigate their ailments. Every donation matters in ensuring that our network is available to everyone. Keep in mind that we do have members who can't afford to subscribe or donate who need the support so if you can donate, please do so that someone who can't may continue to have the support they need.
Spinal Cord Injury (Ontario) & University Health Network (UHN) Patti Dawson Award.
Syringomyelia (SM) Sear-IN-go-my-EEL-ya: also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformation (CM) Key-Ar-ee-mal-for-MAY-shun: When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
Rare Disease: There are over 7000 known rare diseases/disorders. 1 in 12 Canadians will be affected by a rare disease. Rare in the USA, when it affects fewer than 200,000 Americans at any given time. In Europe when a disease affects fewer than 1 in 2000 person, the disease is defined as rare.
Chronic Disease: A chronic disease is one lasting 3 months or more, by the definition of the U.S. National Center for Health Statistics. Chronic diseases generally cannot be prevented by vaccines or cured by medication, nor do they just disappear.
Carion Fenn Foundation is a registered charity established to promote health by providing support services and resources for chronic disease management, while educating the public and those suffering with Syringomyelia and Chiari malformation about rare diseases.
Posted by Carion Fenn Network on September 27, 2021 at 7:11pm 0 Comments 0 Likes
Tonight September 27, 2021 watch as the CN Tower turn #purple in recognition of #chiarimalformation month #september requested by the @carionfenn Foundation to show support for those impacted. See it at…
ContinueLooking forward to summer, not sure what I can do, any suggestions during covid-19?Question from a member, love to hear your feedback. Carion Fenn Network. Continue
Started by Carion Fenn Network in Sample Title Mar 18, 2021.
Carion Fenn Foundation is launching a 12 week seniors program and looking for your ideas on what virtual programs can be done during Covid-19 to help our seniors community. Would love to heard your suggestions. Continue
Tags: seniors, virtualseniorsprogram, seniorsprogram
Started by Carion Fenn Network in Sample Title Oct 14, 2020.
4 members
by Charlie Milne (SM) Added August 14, 2009 at 6:44pm 4 Comments
by Mette Bersang Poulsen (SM) Added October 25, 2009 at 11:49am
by Mette Bersang Poulsen (SM) Added October 25, 2009 at 12:55pm
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