Syringomyelia (SM) Sear-IN-go-my-EEL-ya: also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformation (CM) Key-Ar-ee-mal-for-MAY-shun: When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
Rare Disease: There are over 7000 known rare diseases/disorders. 1 in 12 Canadians will be affected by a rare disease. Rare in the USA, when it affects fewer than 200,000 Americans at any given time. In Europe when a disease affects fewer than 1 in 2000 person, the disease is defined as rare.
Chronic Disease: A chronic disease is one lasting 3 months or more, by the definition of the U.S. National Center for Health Statistics. Chronic diseases generally cannot be prevented by vaccines or cured by medication, nor do they just disappear.
Carion Fenn Foundation is a registered charity established to promote health by providing support services and resources for chronic disease management, while educating the public and those suffering with Syringomyelia and Chiari malformation about rare diseases.
We are looking to start a Monthly Support Group Meeting for those impacted by Syringomyelia, Chiari Malformation and Rare Diseases. A support to put in place after deactivating this network (Carion Fenn Network). We woudl…Continue
Looking forward to summer, not sure what I can do, any suggestions during covid-19?Question from a member, love to hear your feedback. Carion Fenn Network. Continue
Started by Carion Fenn Network in Sample Title Mar 18, 2021.
Carion Fenn Foundation is launching a 12 week seniors program and looking for your ideas on what virtual programs can be done during Covid-19 to help our seniors community. Would love to heard your suggestions. Continue
Started by Carion Fenn Network in Sample Title Oct 14, 2020.
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